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By v4wModerator
July 22, 2021
There are many “taboo” words we often tiptoe around when discussing women with bleeding disorders…
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By v4wModerator
March 24, 2021
Hi all! Happy Wednesday. Just a reminder that the Wednesday Webinar addressing the new VWD…
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By v4wModerator
March 19, 2021
Von Willebrand Disease commonly known as VWD is the most inherited bleeding disorder that effects…
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By v4wModerator
March 11, 2021
Living during a pandemic has posed many challenges for individuals and their sense of normalcy. We…
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By v4wModerator
March 11, 2021
Caregiver stress is a topic that has been recognized within the bleeding disorders community for…
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By v4wModerator
February 03, 2021
Hello V4W users! We know it has been a while since you have heard from us and we would like to…
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By v4wModerator
October 15, 2019
Posted on behalf of NHF Intern & Victory for Women Community Member: Dejah  Caring for an…
motivation
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By v4wModerator
September 16, 2019
Posted on behalf of NHF Intern & Victory for Women Community Member: Dejah  Body image is a…
education
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By v4wModerator
September 10, 2019
Posted on behalf of NHF Intern & Victory for Women Community Member: Dejah  Transitioning into…
women's health
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By V4WChelsea
May 04, 2019
When apart of a blended family it is important to plan ahead, educate yourself and agree on…
parenting
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By V4WChelsea
April 19, 2019
Storybooth is changing the way youth share their truths through storytelling. Storybooth created a…
periods
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By V4WChelsea
April 03, 2019
April 2 marks Equal Pay Day in the United States. This symbolic day represents how far into a new…
empowerment
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By V4WChelsea
March 29, 2019
  This Women's History Month and Bleeding Disorders Awareness month we honor five female…
empowerment
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By v4wModerator
March 16, 2019
Posted on behalf of community member Mary Ann Massolio, Hematology/Oncology Social Worker, Tampa FL…
aging
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By Anonymous
March 04, 2019
Being a parent of a child/children whom has a bleeding disorder is hard. However, being a single…
parenting
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By V4WChelsea
February 21, 2019
According to the United States Center for Disease Control and Prevention ovarian cysts are common…
reproductive health
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By angies.adventures
January 11, 2019
Happy New Year!!! Lets Start off this New year Right!! Don't Forget to Let me Know what you want…
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By V4WChelsea
November 29, 2018
Check out this webinar It's Genetic, Baby from the Hemophilia Federation of America (HFA). Genetic…
family planning
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By Jen G.
October 28, 2018
        I deliberately have not selected an image, to accompany my story, as it’s the images…
Bleeding Disorders
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By v4wModerator
October 20, 2018
Did you know that approximately 50,000 women in Sweden have a bleeding disorder, but only about a…
bleeding disorders
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By Katherine Tyson
August 27, 2018
Hello everyone, I’m wondering is there is anyone else here from the UK? It would be great to get…
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By Taylor D Bentley
August 03, 2018
My Story - (8/2/2018) Hello, I am Taylor Bentley and I live in a small town outside Atlanta. I am…
Rare Bleeding Disorder
Comments (7) Appreciates (309)
By Janine Achury
July 31, 2018
  Since I can remember, I have been a bleeder.  It was even more difficult because I was born in…
VWD
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By laura echandi
July 15, 2018
Hola mi nombre es Laura Echandi y vivo en Los Ángeles, California. Soy madre de un adolescente con…
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By Mayra
July 13, 2018
I'm not going to lie, it's tough being a mom, handling a full time job and a bleeding disorder!   …
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By v4wModerator
July 11, 2018
Read our Victory Spotlight Chapter Staff Honoree, Melissa Reike's Post: 'Story of My Diagnosis…
empowerment
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By angies.adventures
July 01, 2018
Hey, I'm Angie! Here is my 1st vlog on living  with a bleeding disorder as a female! Women don't…
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By Bridget Hunnewell
June 12, 2018
Having my undergraduate degree in Psychology, and currently pursuing my Master's Degree in…
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By Bridget Hunnewell
June 08, 2018
I feel that over the past 23 years of my life, there's been a wide variety of thoughts and opinions…
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By Bridget Hunnewell
June 08, 2018
For me, having a bleeding disorder is something that I have grown to like about myself. Now for…
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By Catherine
June 02, 2018
Nobody else in my family had never heard of it, I was”My name is Catherine. I am 16. I have Von…
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By Michelle Leona Cecil
May 19, 2018
... It Bloody Marked Me Since 1998 I have been attending Camp Bold Eagle with the Hemophilia…
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By V4WChelsea
April 17, 2018
April 17, 2018 marks the 28th World Hemophilia Day. This year's focus is the importance of sharing…
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By v4wModerator
April 05, 2018
Posted on behalf of community member Jo Funderburk, Founder of Moms Like Her.  “Please be a boy,…
moms
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By Jacey Lynn Gonzalez
March 08, 2018
Hi little one,  There is a bright and strong light inside of you. You just have to discover it. I…
empowerment
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By Jacey Lynn Gonzalez
March 06, 2018
I was 16 years old the first time I stepped inside the United States Capitol Building. It was the…
women's health
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By V4WChelsea
March 02, 2018
It's Bleeding Disorders Awareness Month and the kick-off the 2018 Red Tie Campaign! The National…
Bleeding Disorders
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By V4WChelsea
March 01, 2018
The last day of February each year marks Rare Disease Day! The goal is to raise awareness with the…
Bleeding Disorders
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By V4WChelsea
February 16, 2018
HANDI's newly-revised its Family Emergency Kit Checklist is now available in PDF format! The…
education
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By V4WChelsea
February 14, 2018
Emergency situations can arise at any time. If you have to go the emergency room or hospital, it's…
education
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By Anonymous
February 09, 2018
Greetings Bleeding Disorder Patients, I was diagnosed with VWD 16 years ago along with my three…
VWD
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By V4WChelsea
January 19, 2018
Myra Hunter,  emeritus professor of clinical health psychology at King’s College London and…
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By V4WChelsea
January 16, 2018
Is this the year of that promotion you've been eyeing for months now? Is this the year you start…
talents
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By V4WChelsea
January 11, 2018
It's important to know your rights as an employee in the workplace and for employers to understand…
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By V4WChelsea
January 11, 2018
Mayo Clinic researchers show that having a hysterectomy and keeping both ovaries poses an increased…
Bleeding Disorders
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By V4WChelsea
January 05, 2018
A little encouragement, to start 2018 off right! Happy New Year! 
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By V4WChelsea
December 05, 2017
Something had to be done. Every time Ziva Mann would prep to give her son Shai an infusion he would…
moms
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By V4WChelsea
October 31, 2017
Birth control is an important issue for women and girls in the bleeding disorders community. For…
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By V4WChelsea
October 21, 2017
Every year, the third Friday of October marks National Mammography Day as a part of National Breast…
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By V4WChelsea
October 14, 2017
NHF Medical and Scientific Advisory Council (MASAC) met during NHF's 69th Annual Meeting on August…
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By V4WChelsea
October 12, 2017
In 2012 the United Nations marked October 11 as the International Day of the Girl. Today is the day…
girls
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By V4WChelsea
September 30, 2017
Happy belated National Women’s Health and Fitness Day! In today’s day and age fitness and…
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By V4WChelsea
September 25, 2017
On Wednesday, it’s National Women’s Health and Fitness Day and in honor of this special day I’ll be…
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By V4WChelsea
August 18, 2017
This guide includes information adapted from the Hemaware article “Transitioning through Menopause…
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By V4WChelsea
August 16, 2017
 Hormone therapy—birth control—is widely prescribed to women with bleeding disorders to control…
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By V4WChelsea
August 12, 2017
As a woman with a bleeding disorder, your care is multifaceted and usually involves multiple…
Bleeding Disorders
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By V4WChelsea
August 02, 2017
Here are a few tips for having the ‘first period talk’ that's conversational, informative and…
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By V4WChelsea
August 02, 2017
Most women would agree that pregnancy is an exciting time. On the other hand, most women would  …
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By V4WChelsea
August 02, 2017
Carving out time to exercise can sometimes seem impossible; especially when it feels like 24 hours…
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By Arizona Hemophilia Association
June 17, 2017
Don't miss out on this exciting opportunity to be part of the 2017-2018 Bi-Annual NOW Conferences,…
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By V4WChelsea
May 23, 2017
NHF has created Make Your Move fitness videos just for you to get moving as summer fast approaches…
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By V4WChelsea
May 18, 2017
If you have a bleeding disorder and are questioning whether you should be physically active, the…
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By V4WChelsea
May 13, 2017
In honor of Mother's Day I wanted to write a short poem thanking all the mothers, grandmothers and…
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By V4WChelsea
May 13, 2017
The World Federation of Hemophilia dedicated World Hemophilia Day 2017 to supporting the millions…
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By V4WChelsea
April 18, 2017
Hey girl hey!   It’s been about a year since I began my journey. Sooo the whole point is for us to…
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By V4WChelsea
April 18, 2017
Today April 17th on World Hemophilia Day we will continue to raise awareness and support for women…
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By V4WChelsea
April 01, 2017
As Bleeding Disorders Awareness Month comes to a close, I wanted to take a minute to make you aware…
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By V4WChelsea
March 31, 2017
Although Bleeding Disorders Awareness Month is coming to a close, supporting women and girls with…
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By V4WChelsea
March 21, 2017
As March is Women’s History Month I thought it’d be nice to highlight the National Women’s Hall of…
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By V4WChelsea
March 16, 2017
Tune in this Thursday for the latest in NHF’s Make Your Move Physical Therapy Webinar Series! It’s…
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By V4WChelsea
March 16, 2017
 Reflecting on my time spent at Washington Days,  I thought about  the different ways in which we…
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By V4WChelsea
March 10, 2017
As I gear up for my first Washington Days, I took a second to reflect on my own communication…
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By V4WChelsea
March 09, 2017
“International Women’s Day is a global day celebrating the social, economic, cultural and political…
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By V4WChelsea
February 24, 2017
The topic of menstruation is often taboo among men and women. Even now as a young adult, my period…
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By V4WChelsea
February 21, 2017
Many of us may remember the infamous ‘Birds and the Bees’ class (or maybe you just attended it!).…
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By V4WChelsea
February 17, 2017
February marks American Heart Month! Just as many people inaccurately think only men can get…
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By V4WChelsea
February 15, 2017
Roses are red, violets are blue, Valentine’s Day is here and NHF cares for you! Have you just…
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By V4WCorinne
January 25, 2017
This past weekend millions of women gathered to make their voices heard.  The new Congress and…
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By nabila husseni
January 13, 2017
Have you ever noticed how often the challenges we face also contains a blessing in disguise? If not…
Factor Deficiency
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By V4WChelsea
January 13, 2017
If you haven't heard already, many states have something called the  "tampon tax," where tampons…
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By V4WChelsea
January 10, 2017
In March 2016, UK social enterprise company, Coexist announced they were creating a “period policy…
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By V4WChelsea
January 05, 2017
Another New Year is upon us which for many of us, means the annual 'get active, stay active' new…
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By nabila husseni
January 03, 2017
                    My name is Nabila Husseni, I’m 30 years old. I am a severe factor V hemophiliac…
Factor Deficiency
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By V4WChelsea
January 03, 2017
Happy New Year ladies! I hope everyone had an awesome holiday season! Well now that we're back in…
Bleeding Disorders
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By V4WChelsea
December 22, 2016
The holidays are just around the corner, and I am beyond excited to get back to my family and…
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By V4WChelsea
December 21, 2016
 Von Willebrand Disease: the Under-the-Radar Bleeding Disorder discusses how a young woman of 19…
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By V4WChelsea
December 13, 2016
Check out this engaging music video which shows the power of youth, especially young women,…
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By V4WCorinne
December 12, 2016
Hello V4W Community!   Greetings from the NHF Education Team! After lots of planning and input…
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By V4WChelsea
December 08, 2016
On Tuesday, nurses, executive directors, volunteers, and program managers from all over the United…
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By Kate Nammacher
December 08, 2016
Read this interesting article and would love to hear perspectives on this from all of you women in…
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By Marlee Whetten
December 06, 2016
Hey Ladies, At annual meeting this past July I moderated the rap session for women with bleeding…
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By V4WChelsea
November 29, 2016
As women with bleeding disorders know very well, all periods are not created equal! Having said…
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By v4wModerator
July 25, 2016
NHF had a full line up of sessions for women with bleeding disorders. Here are some of the…
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By v4wModerator
July 25, 2016
The focus was research at the Thursday afternoon session, Making Progress: New Initiatives for…
women's health
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By v4wModerator
July 25, 2016
If your first session at NHF’s 68th Annual Meeting was the VWD Precon July 21, you got a healthy…
VWD
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By v4wModerator
July 25, 2016
Cynthia Gauger, MD, pediatric hematologist at the Nemours Children’s Clinic in Jacksonville,…
VWD
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By v4wModerator
July 24, 2016
Artwork created by participants in the Art Therapy workshop of Annual Meeting 2016!
empowerment
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By v4wModerator
July 24, 2016
Artwork created by a participant in the Art Therapy Workshop at Annual Meeting 2016!
empowerment
Comments (1) Appreciates (332)
By v4wModerator
July 24, 2016
Artwork created by a participant in the Art Therapy workshop at Annual Meeting 2016!
inspiration
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By v4wModerator
July 24, 2016
Drawings of superheroes created by women in the Art Therapy workshop at Annual Meeting
empowerment
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By v4wModerator
July 24, 2016
Superheroes created by women at the Art Therapy workshop during Annual Meeting 2016! 
Inspiration
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By v4wModerator
July 24, 2016
"If you could be a superhero who would you be? What superpower would you have?"  Licensed…
motivation
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By v4wModerator
July 22, 2016
Yesterday, July 21, 2016 kicked off the National Hemophilia Foundation's 68th Annual Meeting! Yayyy…
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By Steps for Living
July 09, 2016
For more information and resources on workplace issues and living with a bleeding disorder, check…
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By Steps for Living
July 09, 2016
For more information on VWD and other bleeding disorders, please visit Steps for Living!
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By agregory
July 06, 2016
"Grief is the rope burns left behind when what we have held most dearly is pulled out of reach,…
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By ablong14
June 07, 2016
Growing up, I thought everyone’s father infused. By the age of 7, I knew that was not the case.…
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