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July 22, 2021
There are many “taboo” words we often tiptoe around when discussing women with bleeding disorders…
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March 24, 2021
Hi all! Happy Wednesday. Just a reminder that the Wednesday Webinar addressing the new VWD…
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March 19, 2021
Von Willebrand Disease commonly known as VWD is the most inherited bleeding disorder that effects…
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March 11, 2021
Living during a pandemic has posed many challenges for individuals and their sense of normalcy. We…
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March 11, 2021
Caregiver stress is a topic that has been recognized within the bleeding disorders community for…
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February 03, 2021
Hello V4W users! We know it has been a while since you have heard from us and we would like to…
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October 15, 2019
Posted on behalf of NHF Intern & Victory for Women Community Member: Dejah  Caring for an…
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September 16, 2019
Posted on behalf of NHF Intern & Victory for Women Community Member: Dejah  Body image is a…
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Your Questions

Your Questions Matter! Find out how our panel of medical experts answered questions from women in the community.
Anonymous's picture
Experts Answer:

Severe FVII deficiency is a condition that warrants (in my opinion) rFVIIa prophylaxis, as the risk of life-threatening bleeding is quite high, and many having intracranial hemorrhages, often early in life. Prophylaxis is the only true way to prevent significant joint bleeds. You can discuss with your local HTC some pain control methods including selective COX-2 inhibitors like Celebrex, as there are some side effects to consider. Additionally you should discuss potential alternative therapies (discuss with your local HTC to ensure no anti-platelet effects) depending on your state's laws. Strategies of isometric exercise techniques that your local PT can discuss such as yoga and core exercises to ensure the muscles around the joints are strong. Also use of Kinesiology tape (you have likely seen NBA players and volleyball players using it during games) may be helpful and can be used by your local PT.  

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V4W's Featured Woman

The Victory Spotlight is a woman who has demonstrated her commitment to making her voice heard on behalf of women and girls with bleeding disorders through education, advocacy, mentoring and service. She represents and celebrates the potential of…Read More...