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By v4wModerator
Participating in Hill Day on World Hemophilia Day was an unforgettable, grounding, and deeply…
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By v4wModerator
On April 17th join us to celebrate World Hemophilia Day and raise awareness about hemophilia and…
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By Anonymous
Proper treatment helps me live and active life
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By v4wModerator
March is here, and that means it’s time to come together for Bleeding Disorders Awareness Month!…
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By v4wModerator
The streets are lined with lights and there are Christmas trees in nearly every store window, which…
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By v4wModerator
Are you aware of the preventive health care services covered by your insurance? A study conducted…
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By v4wModerator
Make an impact, share your story! Join Community Voices in Research to make a difference for women'…
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By v4wModerator
Before working with the National Bleeding Disorders Foundation, I worked in reproductive healthcare…
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Your Questions

Your Questions Matter! Find out how our panel of medical experts answered questions from women in the community.
Anonymous's picture
Experts Answer:

Severe FVII deficiency is a condition that warrants (in my opinion) rFVIIa prophylaxis, as the risk of life-threatening bleeding is quite high, and many having intracranial hemorrhages, often early in life. Prophylaxis is the only true way to prevent significant joint bleeds. You can discuss with your local HTC some pain control methods including selective COX-2 inhibitors like Celebrex, as there are some side effects to consider. Additionally you should discuss potential alternative therapies (discuss with your local HTC to ensure no anti-platelet effects) depending on your state's laws. Strategies of isometric exercise techniques that your local PT can discuss such as yoga and core exercises to ensure the muscles around the joints are strong. Also use of Kinesiology tape (you have likely seen NBA players and volleyball players using it during games) may be helpful and can be used by your local PT.  

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