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November 17, 2023
Have you checked out Victory for Women’s Resource tab? This section of the website highlights some…
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October 19, 2023
*Trigger Warning: This article includes discussion around topics such as domestic violence,…
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October 11, 2023
Growing up, I was known as "the nosebleed girl." For several years, I suffered nosebleeds…
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October 07, 2023
The U.S. Food and Drug Administration (FDA) has approved Opill (norgestrel), the first daily oral…
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September 14, 2023
Destigmatizing periods isn’t all on women! Men and people who don’t menstruate can, and should, be…
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August 16, 2023
BDC 2023 is here! NHF’s Annual Bleeding Disorders Conference (BDC) celebrates 75 years of NHF this…
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July 20, 2023
Around 25% of women, girls, and people who have or had the potential to menstruate (WGPPM) in the…
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June 30, 2023
NHF is pleased to share the success of our first ever Women, Girls, and People with the Potential…
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Your Questions

Your Questions Matter! Find out how our panel of medical experts answered questions from women in the community.
Anonymous's picture
Experts Answer:

Severe FVII deficiency is a condition that warrants (in my opinion) rFVIIa prophylaxis, as the risk of life-threatening bleeding is quite high, and many having intracranial hemorrhages, often early in life. Prophylaxis is the only true way to prevent significant joint bleeds. You can discuss with your local HTC some pain control methods including selective COX-2 inhibitors like Celebrex, as there are some side effects to consider. Additionally you should discuss potential alternative therapies (discuss with your local HTC to ensure no anti-platelet effects) depending on your state's laws. Strategies of isometric exercise techniques that your local PT can discuss such as yoga and core exercises to ensure the muscles around the joints are strong. Also use of Kinesiology tape (you have likely seen NBA players and volleyball players using it during games) may be helpful and can be used by your local PT.  

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