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June 18, 2024
As we know, health looks different for everyone. Today’s topic is inspired by a WGPPM session at…
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May 24, 2024
As a person with a bleeding disorder, attending your yearly appointment with your HTC can be…
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April 20, 2024
To better understand Journey to Know, let’s start by first talking about Better You Know (BYK).…
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March 16, 2024
Bleeding Disorders Awareness Month (BDAM) takes place every March and it calls attention to the…
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February 15, 2024
As I started my college journey, I found myself 16 hours away from home. Little did I know that by…
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January 19, 2024
Happy New Year! Do you ever have those routine health check-ups that you’ve been pushing off for…
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December 15, 2023
Earlier this year, I shared a bit about our WGPPM Summit, hosted in May. We’re now excited to share…
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November 17, 2023
Have you checked out Victory for Women’s Resource tab? This section of the website highlights some…
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Your Questions

Your Questions Matter! Find out how our panel of medical experts answered questions from women in the community.
Anonymous's picture
Experts Answer:

Severe FVII deficiency is a condition that warrants (in my opinion) rFVIIa prophylaxis, as the risk of life-threatening bleeding is quite high, and many having intracranial hemorrhages, often early in life. Prophylaxis is the only true way to prevent significant joint bleeds. You can discuss with your local HTC some pain control methods including selective COX-2 inhibitors like Celebrex, as there are some side effects to consider. Additionally you should discuss potential alternative therapies (discuss with your local HTC to ensure no anti-platelet effects) depending on your state's laws. Strategies of isometric exercise techniques that your local PT can discuss such as yoga and core exercises to ensure the muscles around the joints are strong. Also use of Kinesiology tape (you have likely seen NBA players and volleyball players using it during games) may be helpful and can be used by your local PT.  

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