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November 19, 2021
Earlier this month, Governor Gretchen Whitmer, of Michigan, took a stand against period poverty by …
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November 04, 2021
Hi all! Today I want to share a little bit about an inspirational woman that I look up to, named…
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October 21, 2021
Are you looking to deepen your engagement in the women with bleeding disorders community and…
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October 07, 2021
Are you looking for a new resource aimed at women with bleeding disorders? Tune into BloodStream…
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September 22, 2021
Do you know where to find your nearest clinic for women and girls with bleeding disorders? The…
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September 09, 2021
How does eradicating period poverty and ending period stigma contribute to gender equality? Find…
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August 20, 2021
NHF’s 2021 Bleeding Disorders Conference is around the corner! This will be NHF’s 73rd annual BDC,…
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August 05, 2021
Hi all! Hope everyone is doing well and enjoying the sunshine, no matter where in the world you…
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Your Questions

Your Questions Matter! Find out how our panel of medical experts answered questions from women in the community.
Anonymous's picture
Experts Answer:

Severe FVII deficiency is a condition that warrants (in my opinion) rFVIIa prophylaxis, as the risk of life-threatening bleeding is quite high, and many having intracranial hemorrhages, often early in life. Prophylaxis is the only true way to prevent significant joint bleeds. You can discuss with your local HTC some pain control methods including selective COX-2 inhibitors like Celebrex, as there are some side effects to consider. Additionally you should discuss potential alternative therapies (discuss with your local HTC to ensure no anti-platelet effects) depending on your state's laws. Strategies of isometric exercise techniques that your local PT can discuss such as yoga and core exercises to ensure the muscles around the joints are strong. Also use of Kinesiology tape (you have likely seen NBA players and volleyball players using it during games) may be helpful and can be used by your local PT.  

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V4W's Featured Woman

The Victory Spotlight is a woman who has demonstrated her commitment to making her voice heard on behalf of women and girls with bleeding disorders through education, advocacy, mentoring and service. She represents and celebrates the potential of…Read More...