More Like This
A photo you love, a craft you’re proud of, a painting that shows your soul…inspire us with your art!Stories
Writing means sharing – Paul Coelho. A safe space to share your thoughts, stories, poems and more.Videos
And…action! Do you have something you want to show, say or sing? Upload your video here!
Your QuestionsYour Questions Matter! Find out how our panel of medical experts answered questions from women in the community.
Question: I'm severe factor 7 deficient suffering from arthritis pain in left knee and both ankles. Is there any way to reduce pain rather than any surgical procedure as i can't afford or get factor for free.
Severe FVII deficiency is a condition that warrants (in my opinion) rFVIIa prophylaxis, as the risk of life-threatening bleeding is quite high, and many having intracranial hemorrhages, often early in life. Prophylaxis is the only true way to prevent significant joint bleeds. You can discuss with your local HTC some pain control methods including selective COX-2 inhibitors like Celebrex, as there are some side effects to consider. Additionally you should discuss potential alternative therapies (discuss with your local HTC to ensure no anti-platelet effects) depending on your state's laws. Strategies of isometric exercise techniques that your local PT can discuss such as yoga and core exercises to ensure the muscles around the joints are strong. Also use of Kinesiology tape (you have likely seen NBA players and volleyball players using it during games) may be helpful and can be used by your local PT.