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September 17, 2022
Reproductive health is such an important topic in the community of women with bleeding disorders.…
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August 20, 2022
Hear from Patti Williford about her journey as a woman with a bleeding disorder! https://gather.…
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July 14, 2022
We’re more than halfway past the year and BDC 2022 is just around the corner! NHF’s 74th Annual…
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June 17, 2022
A couple months ago, we talked a bit about the great strides Michigan is making by repealing the…
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May 20, 2022
Welcome to Mental Health Awareness Month! This month is dedicated to raising awareness on mental…
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April 15, 2022
*Trigger Warning: This article includes discussion around topics such as sexual assault, harassment…
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March 24, 2022
Bleeding Disorders Awareness Month (BDAM) takes place every March and is an opportunity for anyone…
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March 15, 2022
When I was 13, my whole world changed. What should have come as a relief after waiting for “mine”…
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Your Questions

Your Questions Matter! Find out how our panel of medical experts answered questions from women in the community.
Anonymous's picture
Experts Answer:

Severe FVII deficiency is a condition that warrants (in my opinion) rFVIIa prophylaxis, as the risk of life-threatening bleeding is quite high, and many having intracranial hemorrhages, often early in life. Prophylaxis is the only true way to prevent significant joint bleeds. You can discuss with your local HTC some pain control methods including selective COX-2 inhibitors like Celebrex, as there are some side effects to consider. Additionally you should discuss potential alternative therapies (discuss with your local HTC to ensure no anti-platelet effects) depending on your state's laws. Strategies of isometric exercise techniques that your local PT can discuss such as yoga and core exercises to ensure the muscles around the joints are strong. Also use of Kinesiology tape (you have likely seen NBA players and volleyball players using it during games) may be helpful and can be used by your local PT.  

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