Severe FVII deficiency is a condition that warrants (in my opinion) rFVIIa prophylaxis, as the risk…
Real questions from women in the community, answers by medical professionals. If you would like to submit a question, please click here. Please note that NHF under no circumstances recommends particular treatment for specific individuals and in all cases recommends that you consult your physician or local treatment center before pursuing any course of treatment.
May 05, 2019
I'm severe factor 7 deficient suffering from arthritis pain in left knee and both ankles. Is there any way to reduce pain rather than any surgical procedure as i can't afford or get factor for free.
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May 05, 2019
Factor IX- Severe runs in my family and I was diagnosed with FIX mild. What concerns should I have for getting pregnant. Risks to me or to my child that may or may not have hemophilia or bad. (My family has both)
Hemophilia B (FX IX) occurs in 1 in 25,000 boys. The severity type is associated with the inherited…
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April 04, 2019
I was wondering if the scholarship application was still available and could someone with Factor V Leiden apply. Thank you.
Currently, there are no Victory for Women scholarship opportunities. The National Hemophilia…
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By Doreen Rousseau-Purdy
January 01, 2019
Being a carrier does not affect menopause. If one uses hormonal therapies, withdrawal bleeding from…
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By Sarah Roy
December 12, 2018
I just got put on stimate for my heavy menstrual cycle, i needed to use it twice in a 12 hr time due to heavy bleeding, Is this ok or when I go back to my hematologist in 6 months is their a stronger spray? or more options?
It's important that you bring any concerns or questions about your treatment to your hematologist,…
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November 11, 2018
I am a symptomatic carrier with easy bruising, a hisory of severe menorrhgia & chronic anemia, and a hemarthosis after a minor knee injury. I avoid aspirin and NSAIDs--do I need to?
Good question. The term 'symptomatic carrier' is broad, and can characterize hemophilia A and B…
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August 08, 2018
I am a woman with a bleeding disorder. I was prescribed osteoporosis RX by infusion at the hospital every six months. I have a history of joint pain, bruising, and nosebleeds while on other osteoporosis RXs. Is it safe to take?
Osteoporosis is defined by a severe reduction in bone mineral density (BMD) predisposing to…
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By Dr. Expert
May 05, 2018
The pathogenic variant does not change over time but in VWD there is significant expressivity and…
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April 04, 2018
It is safe, but would require high-risk obstetrics to be involved since the FVII level is below…
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By Dr. Expert
March 03, 2018
Often times bleeding in organs may be difficult to recognize as it may manifest as nausea,…
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