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By Anonymous
October 11, 2023
Growing up, I was known as "the nosebleed girl." For several years, I suffered nosebleeds…
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By v4wModerator
March 16, 2023
Happy Bleeding Disorders Awareness Month (BDAM)! Check out ways you can join the conversation for…
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By v4wModerator
December 15, 2022
The holiday season arrived before we even knew it! No matter what holiday you celebrate, if any,…
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By v4wModerator
December 02, 2022
In these past few months, the landscape of women’s health care has considerably shifted, leaving…
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By v4wModerator
August 20, 2022
Hear from Patti Williford about her journey as a woman with a bleeding disorder! https://gather.…
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By v4wModerator
July 14, 2022
We’re more than halfway past the year and BDC 2022 is just around the corner! NHF’s 74th Annual…
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By v4wModerator
June 17, 2022
A couple months ago, we talked a bit about the great strides Michigan is making by repealing the…
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By v4wModerator
May 20, 2022
Welcome to Mental Health Awareness Month! This month is dedicated to raising awareness on mental…
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By v4wModerator
April 15, 2022
*Trigger Warning: This article includes discussion around topics such as sexual assault, harassment…
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By v4wModerator
March 24, 2022
Bleeding Disorders Awareness Month (BDAM) takes place every March and is an opportunity for anyone…
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Anonymous's picture
By Anonymous
March 15, 2022
When I was 13, my whole world changed. What should have come as a relief after waiting for “mine”…
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By v4wModerator
February 17, 2022
Hi everyone – Happy February and Happy Black History Month! Today I want to add to the “…
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By v4wModerator
January 26, 2022
Happy New Year! I hope everyone had a wonderful holiday season and welcomed in the new year with…
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By v4wModerator
December 23, 2021
The holiday season is finally upon us! No matter what holiday you celebrate, if any, there is…
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By v4wModerator
November 19, 2021
Earlier this month, Governor Gretchen Whitmer, of Michigan, took a stand against period poverty by …
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By v4wModerator
November 04, 2021
Hi all! Today I want to share a little bit about an inspirational woman that I look up to, named…
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By v4wModerator
October 21, 2021
Are you looking to deepen your engagement in the women with bleeding disorders community and…
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By v4wModerator
October 07, 2021
Are you looking for a new resource aimed at women with bleeding disorders? Tune into BloodStream…
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By v4wModerator
September 22, 2021
Do you know where to find your nearest clinic for women and girls with bleeding disorders? The…
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By v4wModerator
August 20, 2021
NHF’s 2021 Bleeding Disorders Conference is around the corner! This will be NHF’s 73rd annual BDC,…
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By v4wModerator
August 05, 2021
Hi all! Hope everyone is doing well and enjoying the sunshine, no matter where in the world you…
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By v4wModerator
July 22, 2021
There are many “taboo” words we often tiptoe around when discussing women with bleeding disorders…
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By v4wModerator
March 24, 2021
Hi all! Happy Wednesday. Just a reminder that the Wednesday Webinar addressing the new VWD…
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By v4wModerator
March 19, 2021
Von Willebrand Disease commonly known as VWD is the most inherited bleeding disorder that effects…
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By v4wModerator
March 11, 2021
Living during a pandemic has posed many challenges for individuals and their sense of normalcy. We…
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By v4wModerator
March 11, 2021
Caregiver stress is a topic that has been recognized within the bleeding disorders community for…
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By v4wModerator
February 03, 2021
Hello V4W users! We know it has been a while since you have heard from us and we would like to…
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By v4wModerator
October 15, 2019
Posted on behalf of NHF Intern & Victory for Women Community Member: Dejah  Caring for an…
motivation
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By v4wModerator
September 16, 2019
Posted on behalf of NHF Intern & Victory for Women Community Member: Dejah  Body image is a…
education
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By v4wModerator
September 10, 2019
Posted on behalf of NHF Intern & Victory for Women Community Member: Dejah  Transitioning into…
women's health
Comments (0) Appreciates (386)
By V4WChelsea
May 04, 2019
When apart of a blended family it is important to plan ahead, educate yourself and agree on…
parenting
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By V4WChelsea
April 03, 2019
April 2 marks Equal Pay Day in the United States. This symbolic day represents how far into a new…
empowerment
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By V4WChelsea
March 29, 2019
  This Women's History Month and Bleeding Disorders Awareness month we honor five female…
empowerment
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By v4wModerator
March 16, 2019
Posted on behalf of community member Mary Ann Massolio, Hematology/Oncology Social Worker, Tampa FL…
aging
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Anonymous's picture
By Anonymous
March 04, 2019
Being a parent of a child/children whom has a bleeding disorder is hard. However, being a single…
parenting
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By V4WChelsea
February 21, 2019
According to the United States Center for Disease Control and Prevention ovarian cysts are common…
reproductive health
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By angies.adventures
January 11, 2019
Happy New Year!!! Lets Start off this New year Right!! Don't Forget to Let me Know what you want…
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By Jen G.
October 28, 2018
        I deliberately have not selected an image, to accompany my story, as it’s the images…
Bleeding Disorders
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By Katherine Tyson
August 27, 2018
Hello everyone, I’m wondering is there is anyone else here from the UK? It would be great to get…
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By Taylor D Bentley
August 03, 2018
My Story - (8/2/2018) Hello, I am Taylor Bentley and I live in a small town outside Atlanta. I am…
Rare Bleeding Disorder
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By Janine Achury
July 31, 2018
  Since I can remember, I have been a bleeder.  It was even more difficult because I was born in…
VWD
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By Mayra
July 13, 2018
I'm not going to lie, it's tough being a mom, handling a full time job and a bleeding disorder!   …
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By v4wModerator
July 11, 2018
Read our Victory Spotlight Chapter Staff Honoree, Melissa Reike's Post: 'Story of My Diagnosis…
empowerment
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By Bridget Hunnewell
June 12, 2018
Having my undergraduate degree in Psychology, and currently pursuing my Master's Degree in…
Comments (1) Appreciates (442)
By Bridget Hunnewell
June 08, 2018
I feel that over the past 23 years of my life, there's been a wide variety of thoughts and opinions…
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By Bridget Hunnewell
June 08, 2018
For me, having a bleeding disorder is something that I have grown to like about myself. Now for…
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By Catherine
June 02, 2018
Nobody else in my family had never heard of it, I was”My name is Catherine. I am 16. I have Von…
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By v4wModerator
April 05, 2018
Posted on behalf of community member Jo Funderburk, Founder of Moms Like Her.  “Please be a boy,…
moms
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By Jacey Lynn Gonzalez
March 08, 2018
Hi little one,  There is a bright and strong light inside of you. You just have to discover it. I…
empowerment
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By Jacey Lynn Gonzalez
March 06, 2018
I was 16 years old the first time I stepped inside the United States Capitol Building. It was the…
women's health
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By V4WChelsea
February 16, 2018
HANDI's newly-revised its Family Emergency Kit Checklist is now available in PDF format! The…
education
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Anonymous's picture
By Anonymous
February 09, 2018
Greetings Bleeding Disorder Patients, I was diagnosed with VWD 16 years ago along with my three…
VWD
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By V4WChelsea
January 19, 2018
Myra Hunter,  emeritus professor of clinical health psychology at King’s College London and…
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By V4WChelsea
January 11, 2018
Mayo Clinic researchers show that having a hysterectomy and keeping both ovaries poses an increased…
Bleeding Disorders
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By V4WChelsea
December 05, 2017
Something had to be done. Every time Ziva Mann would prep to give her son Shai an infusion he would…
moms
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By V4WChelsea
October 31, 2017
Birth control is an important issue for women and girls in the bleeding disorders community. For…
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By V4WChelsea
October 14, 2017
NHF Medical and Scientific Advisory Council (MASAC) met during NHF's 69th Annual Meeting on August…
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By V4WChelsea
September 25, 2017
On Wednesday, it’s National Women’s Health and Fitness Day and in honor of this special day I’ll be…
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By V4WChelsea
August 02, 2017
Most women would agree that pregnancy is an exciting time. On the other hand, most women would  …
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By V4WChelsea
August 02, 2017
Carving out time to exercise can sometimes seem impossible; especially when it feels like 24 hours…
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By Arizona Hemophilia Association
June 17, 2017
Don't miss out on this exciting opportunity to be part of the 2017-2018 Bi-Annual NOW Conferences,…
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By V4WChelsea
May 18, 2017
If you have a bleeding disorder and are questioning whether you should be physically active, the…
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By V4WChelsea
May 13, 2017
In honor of Mother's Day I wanted to write a short poem thanking all the mothers, grandmothers and…
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By V4WChelsea
May 13, 2017
The World Federation of Hemophilia dedicated World Hemophilia Day 2017 to supporting the millions…
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By V4WChelsea
April 18, 2017
Hey girl hey!   It’s been about a year since I began my journey. Sooo the whole point is for us to…
Comments (0) Appreciates (439)
By V4WChelsea
April 01, 2017
As Bleeding Disorders Awareness Month comes to a close, I wanted to take a minute to make you aware…
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By V4WChelsea
March 21, 2017
As March is Women’s History Month I thought it’d be nice to highlight the National Women’s Hall of…
Comments (0) Appreciates (425)
By V4WChelsea
March 16, 2017
Tune in this Thursday for the latest in NHF’s Make Your Move Physical Therapy Webinar Series! It’s…
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By V4WChelsea
March 16, 2017
 Reflecting on my time spent at Washington Days,  I thought about  the different ways in which we…
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By V4WChelsea
March 10, 2017
As I gear up for my first Washington Days, I took a second to reflect on my own communication…
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By V4WChelsea
March 09, 2017
“International Women’s Day is a global day celebrating the social, economic, cultural and political…
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By V4WChelsea
February 21, 2017
Many of us may remember the infamous ‘Birds and the Bees’ class (or maybe you just attended it!).…
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By V4WChelsea
February 17, 2017
February marks American Heart Month! Just as many people inaccurately think only men can get…
Comments (0) Appreciates (432)
By V4WChelsea
February 15, 2017
Roses are red, violets are blue, Valentine’s Day is here and NHF cares for you! Have you just…
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By V4WCorinne
January 25, 2017
This past weekend millions of women gathered to make their voices heard.  The new Congress and…
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By nabila husseni
January 13, 2017
Have you ever noticed how often the challenges we face also contains a blessing in disguise? If not…
Factor Deficiency
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By V4WChelsea
January 13, 2017
If you haven't heard already, many states have something called the  "tampon tax," where tampons…
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By V4WChelsea
January 10, 2017
In March 2016, UK social enterprise company, Coexist announced they were creating a “period policy…
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By V4WChelsea
January 05, 2017
Another New Year is upon us which for many of us, means the annual 'get active, stay active' new…
Comments (0) Appreciates (497)
By nabila husseni
January 03, 2017
                    My name is Nabila Husseni, I’m 30 years old. I am a severe factor V hemophiliac…
Factor Deficiency
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By V4WChelsea
January 03, 2017
Happy New Year ladies! I hope everyone had an awesome holiday season! Well now that we're back in…
Bleeding Disorders
Comments (0) Appreciates (489)
By V4WChelsea
December 22, 2016
The holidays are just around the corner, and I am beyond excited to get back to my family and…
Comments (0) Appreciates (471)
By V4WChelsea
December 21, 2016
 Von Willebrand Disease: the Under-the-Radar Bleeding Disorder discusses how a young woman of 19…
Comments (1) Appreciates (556)
By V4WCorinne
December 12, 2016
Hello V4W Community!   Greetings from the NHF Education Team! After lots of planning and input…
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By V4WChelsea
December 08, 2016
On Tuesday, nurses, executive directors, volunteers, and program managers from all over the United…
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By Kate Nammacher
December 08, 2016
Read this interesting article and would love to hear perspectives on this from all of you women in…
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By Marlee Whetten
December 06, 2016
Hey Ladies, At annual meeting this past July I moderated the rap session for women with bleeding…
Comments (0) Appreciates (511)
By V4WChelsea
November 29, 2016
As women with bleeding disorders know very well, all periods are not created equal! Having said…
Comments (0) Appreciates (518)
By v4wModerator
July 25, 2016
NHF had a full line up of sessions for women with bleeding disorders. Here are some of the…
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By v4wModerator
July 25, 2016
The focus was research at the Thursday afternoon session, Making Progress: New Initiatives for…
women's health
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By v4wModerator
July 25, 2016
If your first session at NHF’s 68th Annual Meeting was the VWD Precon July 21, you got a healthy…
VWD
Comments (1) Appreciates (575)
By v4wModerator
July 25, 2016
Cynthia Gauger, MD, pediatric hematologist at the Nemours Children’s Clinic in Jacksonville,…
VWD
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By v4wModerator
July 24, 2016
"If you could be a superhero who would you be? What superpower would you have?"  Licensed…
motivation
Comments (0) Appreciates (432)
By v4wModerator
July 22, 2016
Yesterday, July 21, 2016 kicked off the National Hemophilia Foundation's 68th Annual Meeting! Yayyy…
Comments (0) Appreciates (488)
By agregory
July 06, 2016
"Grief is the rope burns left behind when what we have held most dearly is pulled out of reach,…
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By ablong14
June 07, 2016
Growing up, I thought everyone’s father infused. By the age of 7, I knew that was not the case.…
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