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September 09, 2021
How does eradicating period poverty and ending period stigma contribute to gender equality? Find…
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April 19, 2019
Storybooth is changing the way youth share their truths through storytelling. Storybooth created a…
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November 29, 2018
Check out this webinar It's Genetic, Baby from the Hemophilia Federation of America (HFA). Genetic…
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October 20, 2018
Did you know that approximately 50,000 women in Sweden have a bleeding disorder, but only about a…
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July 01, 2018
Hey, I'm Angie! Here is my 1st vlog on living  with a bleeding disorder as a female! Women don't…
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March 01, 2018
The last day of February each year marks Rare Disease Day! The goal is to raise awareness with the…
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January 16, 2018
Is this the year of that promotion you've been eyeing for months now? Is this the year you start…
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January 11, 2018
It's important to know your rights as an employee in the workplace and for employers to understand…
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Your Questions

Your Questions Matter! Find out how our panel of medical experts answered questions from women in the community.
Anonymous's picture
Experts Answer:

Severe FVII deficiency is a condition that warrants (in my opinion) rFVIIa prophylaxis, as the risk of life-threatening bleeding is quite high, and many having intracranial hemorrhages, often early in life. Prophylaxis is the only true way to prevent significant joint bleeds. You can discuss with your local HTC some pain control methods including selective COX-2 inhibitors like Celebrex, as there are some side effects to consider. Additionally you should discuss potential alternative therapies (discuss with your local HTC to ensure no anti-platelet effects) depending on your state's laws. Strategies of isometric exercise techniques that your local PT can discuss such as yoga and core exercises to ensure the muscles around the joints are strong. Also use of Kinesiology tape (you have likely seen NBA players and volleyball players using it during games) may be helpful and can be used by your local PT.  

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V4W's Featured Woman

The Victory Spotlight is a woman who has demonstrated her commitment to making her voice heard on behalf of women and girls with bleeding disorders through education, advocacy, mentoring and service. She represents and celebrates the potential of…Read More...