At the World Federation for Hemophilia’s Global Summit on Women and Girls with Bleeding Disorders, one of the featured hot topics highlighted the experiences of Nikole Scappe-Hagen, Manager of Education at the National Bleeding Disorders Foundation. In her video, Nikole shared her lived experience with von Willebrand disease and discussed how living with a bleeding disorder has impacted her joint health.
Her story shed light on the challenges women face in accessing timely diagnosis and care. By speaking openly about her journey, Nikole continues to inspire others in the bleeding disorders community to advocate for themselves and raise awareness.
