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April 15, 2022
*Trigger Warning: This article includes discussion around topics such as sexual assault, harassment…
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March 24, 2022
Bleeding Disorders Awareness Month (BDAM) takes place every March and is an opportunity for anyone…
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March 15, 2022
When I was 13, my whole world changed. What should have come as a relief after waiting for “mine”…
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March 04, 2022
Looking for a quick explainer video on how a bleeding disorder could affect your menstrual cycle?…
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February 17, 2022
Hi everyone – Happy February and Happy Black History Month! Today I want to add to the “…
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January 26, 2022
Happy New Year! I hope everyone had a wonderful holiday season and welcomed in the new year with…
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December 23, 2021
The holiday season is finally upon us! No matter what holiday you celebrate, if any, there is…
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November 19, 2021
Earlier this month, Governor Gretchen Whitmer, of Michigan, took a stand against period poverty by …
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Your Questions

Your Questions Matter! Find out how our panel of medical experts answered questions from women in the community.
Anonymous's picture
Experts Answer:

Severe FVII deficiency is a condition that warrants (in my opinion) rFVIIa prophylaxis, as the risk of life-threatening bleeding is quite high, and many having intracranial hemorrhages, often early in life. Prophylaxis is the only true way to prevent significant joint bleeds. You can discuss with your local HTC some pain control methods including selective COX-2 inhibitors like Celebrex, as there are some side effects to consider. Additionally you should discuss potential alternative therapies (discuss with your local HTC to ensure no anti-platelet effects) depending on your state's laws. Strategies of isometric exercise techniques that your local PT can discuss such as yoga and core exercises to ensure the muscles around the joints are strong. Also use of Kinesiology tape (you have likely seen NBA players and volleyball players using it during games) may be helpful and can be used by your local PT.  

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