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July 15, 2018
Hola mi nombre es Laura Echandi y vivo en Los Ángeles, California. Soy madre de un adolescente con…
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May 19, 2018
... It Bloody Marked Me Since 1998 I have been attending Camp Bold Eagle with the Hemophilia…
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April 17, 2018
April 17, 2018 marks the 28th World Hemophilia Day. This year's focus is the importance of sharing…
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March 02, 2018
It's Bleeding Disorders Awareness Month and the kick-off the 2018 Red Tie Campaign! The National…
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February 14, 2018
Emergency situations can arise at any time. If you have to go the emergency room or hospital, it's…
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January 05, 2018
A little encouragement, to start 2018 off right! Happy New Year! 
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October 21, 2017
Every year, the third Friday of October marks National Mammography Day as a part of National Breast…
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August 18, 2017
This guide includes information adapted from the Hemaware article “Transitioning through Menopause…
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Your Questions

Your Questions Matter! Find out how our panel of medical experts answered questions from women in the community.
Anonymous's picture
Experts Answer:

Severe FVII deficiency is a condition that warrants (in my opinion) rFVIIa prophylaxis, as the risk of life-threatening bleeding is quite high, and many having intracranial hemorrhages, often early in life. Prophylaxis is the only true way to prevent significant joint bleeds. You can discuss with your local HTC some pain control methods including selective COX-2 inhibitors like Celebrex, as there are some side effects to consider. Additionally you should discuss potential alternative therapies (discuss with your local HTC to ensure no anti-platelet effects) depending on your state's laws. Strategies of isometric exercise techniques that your local PT can discuss such as yoga and core exercises to ensure the muscles around the joints are strong. Also use of Kinesiology tape (you have likely seen NBA players and volleyball players using it during games) may be helpful and can be used by your local PT.  

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V4W's Featured Woman

The Victory Spotlight is a woman who has demonstrated her commitment to making her voice heard on behalf of women and girls with bleeding disorders through education, advocacy, mentoring and service. She represents and celebrates the potential of…Read More...